Creating Dementia-friendly Communities, One Dementia Friend at a Time

Lori Deporteravatar

byLori Deporter|

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研究建议genetic connection在帕金森氏病,阿尔茨海默氏病和刘易身体痴呆之间。因此,当我父亲被诊断出患有阿尔茨海默氏症时,我成为了倡导者痴呆意识

我也许ay not face dementia as my Parkinson’s progresses, but my dad is facing it now. Together, we areBatman and Robin。We do things together. The most important parts of our adventures are the opportunities to empower him. This could mean helping him pay the check if we go out to lunch (Batman: 1, Alzheimer’s: 0). It sounds simple, but it requires patience from others, and I am grateful when we receive it.

Recently, I was introduced toDementia Friends USA,这是一项全球努力的计划,以提高我们社区的痴呆症意识。上个月,我和我的妈妈参加了一次直播,并成为了我国100,000个痴呆症朋友中的两个。

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科学家将PIAS2蛋白识别为帕金森痴呆症的驱动力

What are Dementia Friends and dementia-friendly communities?

该计划的网站指出,痴呆症朋友“是一个通过观看一系列在线视频或参加现场会议的人,了解与痴呆症生活的感觉,然后将这种理解变成行动。”任何人都可以成为痴呆症朋友。

The website also explains that, “Dementia friendly communities are villages, towns and cities where more people understand dementia, there is less fear and avoidance, and people living with dementia are included and supported to live independently for longer.”

Dementia is more than memory loss and confusion.

也可能导致vision changes。During the session, we participated in an interactive exercise that allowed us to simulate some of the vision changes that occur at various stages of the disease.

使用痴呆症,视野可以减少到大约12英寸。为了复制这一点,我们将双手托在眼睛周围,只能看到我们面前的东西,因为我们的外围视力受到限制。因此,要面对痴呆症的人很重要,但也要意识到,从侧面接近他们可能会吓到他们。

As the disease progresses, the brain cannot process information from both eyes, so it begins to use only one. This will affect depth perception. For example, a person with dementia may reach across the table and eat from someone else’s plate, rather than their own. They see what’s directly in front of them, but not its dimensions.

The presentation ended with a video from the perspective of someone with dementia navigating their day. It sent a powerful message: Educating people and removing the stigma attached to disabilities can make a difference.

Do we have Parkinson’s- and disability-friendly communities?

尽管我一直都有它,但我的帕金森氏症并不是每个人都显而易见的。结果,我不愿要求住宿。最近,我的心态改变了。当我购买门票即将举行的旅行和表演时,我要求住宿。但是,当时间到来时,我会解释一下自己吗?我能解释一下线条和步骤会使我紧张,从而导致震颤?我想这将取决于情况。但是,如果有人想了解帕金森氏症,我将借此机会对他们进行教育。

9月是世界阿尔茨海默氏症的月份。考虑成为痴呆症朋友,或鼓励您的雇主成为一个dementia-friendly business。Together, we can build communities where people with all disabilities, including dementia, are understood and accepted.

Or, perhaps we can take it a step further, and be patient and kind to everyone. Everyone struggles with something that others can’t see.

Is your community disability-friendly? Let me know in the comments below, or share your experiences at the帕金森今天的新闻Forums

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Note:帕金森今天的新闻is strictly a news and information website about the disease. It does not provide medical advice, diagnosis ortreatment。此内容并不是要代替专业的医疗建议,诊断或treatment。始终在医生方面寻求医生或其他合格的健康提供者的建议。由于您在本网站上阅读的内容,切勿忽略专业医疗建议或延迟寻求它。本专栏中表达的意见不是帕金森今天的新闻or its parent company, BioNews, and are intended to spark discussion about issues pertaining to Parkinson’s disease.

注释

James Hamilton avatar

James Hamilton

谢谢你。我在57岁时被诊断出患有进行性血管性痴呆症。自从诊断出我的诊断以来,我一直是使我的城市成为痴呆症友好城市(德克萨斯州科珀斯克里斯蒂市)的一员。现在,我正在努力使整个州成为痴呆症友好状态。

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Lori Deporteravatar

Lori Deporter

Good for you. I hope you find support in your community. Visit our forums and join the conversation...

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Shirley gibbons avatar

Shirley gibbons

洛里(Lori),我喜欢您的博客,您确实是所有人的灵感!

God’s blessings sweet friend!

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Lori Deporteravatar

Lori Deporter

谢谢!祝福您和您的家人!

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Antonio Nassar avatar

Antonio Nassar

喜欢博客

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Lori Deporteravatar

Lori Deporter

谢谢你。很高兴收到我们的读者的来信!

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