我们使用帕金森病的许多面具

Lori Deporter.avatar

byLori Deporter.|

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谁一年前就知道我们的配件将包括面部面具?我们穿着他们彼此保护。

对于我们中的一些人与帕金森病的疾病,这种面具可以保护我们,但它隐藏了另一个 -Parkinson’s mask

这个面具不是配件。这是一种使面部表情困难的症状。这是令人沮丧的,经常是misunderstood as disinterest,特别是如果它带来了朋友,声音更柔软。

In Parkinson’s, the same muscle stiffness that occurs throughout the body also occurs in the face, neck, and throat, which means more exercise! I was familiar with theLee Silverman Voice Treatment, but I wanted an additional program. My search led me toLet’s FACE It Together, an exercise program to strengthen facial muscles. As an added bonus, it fights wrinkles.

On a recent road trip from Pennsylvania to North Carolina, my husband, Mike, and I decided to give it a try. Pretty soon, we were saying, “EEEE” and “EWW” while contorting our faces. This exercise was followed by another in which our faces became ridiculous caricatures of chipmunk cheeks. But we laughed, had a nice time, and felt good about it. (The chipmunks and humans we drove by may have been mocking us, but who cares!)

Parkinson’s other masks

This raises the question: Are there more Parkinson’s masks? The answer is a resounding yes! We create them for ourselves and choose which one to wear. They are the masks of perception.

我希望别人看到什么?或者更重要的是,什么don’tI want them to see?

It’s exhausting to put on the “I am doing well” mask and keep it on as I go about my day. However, I do the best I can to wear it and keep the other masks hidden. I don’t want those around me to see the battle raging inside or the enemy I am facing. I hope to避免尴尬的对话and the “puppy dog eyes.”

But what about our loved ones that we want to protect? What do we want them to see? They are our support system. Can we hide behind the mask from those who know us the best? More importantly, should we?

I have stopped trying. Despite what others see all day, Mike cannot be fooled. He knows when I am “not good,” and then it is time to take off the mask. I am safe, and I have nothing to hide. I can be unapologetically me — exhausted and tired, but that’s OK.

我们都有我们的面具。帕金森与否,我们选择与他人分享的人。只要记住,下次你发现自己在车里,就会制作腥脸。你会锻炼,它可能会让别人微笑。这是一个胜利。

A note from Mike: “[Lori] does fool me sometimes, but I truly understand the challenge. My best to all of you, and your families. Fight the good fight!”

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Note:今天帕金森的新闻is strictly a news and information website about the disease. It does not provide medical advice, diagnosis ortreatment。此内容并非旨在替代专业医疗建议,诊断或treatment。始终寻求您的医生或其他合格的健康提供者的建议,您可能对医疗状况有任何问题。由于您在本网站上阅读的内容,从来没有忽视专业的医疗建议或延迟寻求它。本专栏中表达的意见不是那些今天帕金森的新闻或其票面价值ent company, BioNews, and are intended to spark discussion about issues pertaining to Parkinson’s disease.

注释

Shirley Gibbons.avatar

Shirley Gibbons.

无需隐藏亲爱的朋友!我们喜欢和接受你的方式

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Lori Deporter.avatar

Lori Deporter.

Thank you Shirley!

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